Are you looking for a way to celebrate Rare Disease Day? We’ve got a way you can celebrate the entire week! Each day we’ll be sharing a theme on Facebook and Instagram, but we’re sharing the entire week here, in case you want to plan ahead.
The days and weeks leading up to Rare Disease Day (Feb. 28) are a great time to educate about galactosemia and raise funds to support our community! But it’s never too late, so you can start sharing this week and continue into March.
Take a look at the days below and make plans to share with your social followers this week. You can always take this opportunity to share your personal experience with galactosemia and encourage donations!
Monday, Feb. 24: Superhero Day
Dress up as a superhero to represent the strength and resilience of the galactosemia community. Share your images online and tag the Galactosemia Foundation!
You can use this link to solicit donations: https://galactosemia.org/donate-now/
Tuesday, Feb. 25: Teamwork Day
Wear your favorite sports team’s gear to celebrate the teamwork it takes to navigate rare diseases. Share your images online and tag the Galactosemia Foundation!
You can use this link to solicit donations: https://galactosemia.org/donate-now/
Wednesday, Feb. 26: Come and Shine – Our Future is Bright
Dress in neon colors to present the hopeful future for those living with galactosemia. Share your images online and tag the Galactosemia Foundation!
You can use this link to solicit donations: https://galactosemia.org/donate-now/
Thursday, Feb. 27: Take Action Thursday
Wear red, white and blue on Thursday! Take action by sharing facts about galactosemia, contact legislators about newborn screening, research funding or healthcare access. Inspire others to get involved.
Friday, Feb. 28: Wear Zebra Print for Rare Disease Day
Wear zebra print, the symbol for rare disease. Bring treat bags or zebra coloring pages to school. Ask schools to promote Rare Disease Day. Share your images online and tag the Galactosemia Foundation!
You can use this link to solicit donations: https://galactosemia.org/donate-now/
