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A Handbook for the Galactosemia Community

This galactosemia handbook presents current information for each life stage, including various symptoms that may appear. Cited recommendations are based on the international clinical guideline, peer-reviewed data, expert insights, and first-hand experience from the galactosemia community.


Galactosemia Toolkit for Newly Diagnosed Families

The Galactosemia Foundation’s informative guide gives you the tools and resources you need to be the best advocate for your child.

Help Manage Your Galactosemia

Diet Guidelines

Learn more about a Galactosemia-friendly diet.

Help Manage Your Galactosemia

Clinical Guidelines

International clinical guidelines for the management of classical galactosemia: diagnosis, treatment, and follow-up.

Social Media

The Galactosemia Foundation maintains official Facebook, Twitter, Instagram, and Pinterest accounts.

There are many other groups available on Facebook, other social media sites and blogs and websites that you can find by searching the internet for ‘galactosemia’.

Sites other than our official website and social media accounts are maintained by individuals and are not officially affiliated with the Galactosemia Foundation. Please note that individuals stories and experiences vary and most people posting are not qualified to provide medical advice.  Please consult with qualified professionals for diet and medical advice.