Some of the complications teens may continue or begin to experience are:
Teenagers will continue to see their specialist once a year. Depending on the situation, they may continue to receive regular neuropsychological assessments, psychological and cognitive testing and bone density screening. In addition, females will likely start seeing an OB-GYN specializing in female healthcare to assist with puberty, if necessary and monitor for primary ovarian insufficiency.
The Galactosemia Foundation’s informative guide gives you the tools and resources you need to be the best advocate for your child.
Whether your child was recently diagnosed, you are waiting for confirmation results or just trying to learn more about galactosemia, you’ve come to the right place.