Because galactosemia can impact how a child learns, they may need more support in school. Developmental delays may become more noticeable as your child begins school. It’s important to discuss the condition with your child’s teacher and school so they understand the support needed.
As your child grows, new complications may occur, or existing symptoms may change or worsen. Here are possible issues during the primary school years:
At this point your child may only need yearly visits to their metabolic specialist. They may also undergo a neurological exam to help understand the full scope of your child’s development. Around 8 years old they also may have a bone density test to measure the amount of calcium and minerals in their bones.
The Galactosemia Foundation’s informative guide gives you the tools and resources you need to be the best advocate for your child.
Whether your child was recently diagnosed, you are waiting for confirmation results or just trying to learn more about galactosemia, you’ve come to the right place.