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Advocating for our Community

 

 

Advocate Now!

We know advocacy can be time consuming and overwhelming, but it is important that our community shares their personal experience with galactosemia and the need for a treatment.

Advocacy matters. Whether you share your galactosemia journey, raise awareness and funds, join our advocacy team or speak with legislators, every effort helps advance understanding, support families, and drive meaningful change for our community.

Rare diseases need strong voices. Here are ways you can advocate for our community.

Join our advocacy team: E-mail Gillian Sapia at Advocacy@galactosemia.org