The application window for the next grant round is now open. For more information, please see the tab “Important Grant Information 2024-2026” for the RFA and Policies/Procedures. The grant will again be a 2 stage process. To be eligible, you must submit an application for Stage 1. Stage 2 is by invitation only after the review of Stage 1. If you do not submit an application for Stage 1, you will not be considered for Stage 2. The decision to award the grant will then be made by the Galactosemia Foundation based on results from Stage 2. If you have any questions, please contact research@galactosemia.org.
While all galactosemia related research projects will be evaluated and considered, preferential consideration will be given to topic areas related to premature ovarian insufficiency/failure (POI/POF), neurological deficits (i.e., tremors, seizures, movement disorders, etc.), bone health, cognition and aging. The foundation will accept projects that answer an outstanding question or address an unmet need of our community. We are particularly interested in advancing the identification and treatment of complications related to Classic Galactosemia and the causes of variability of outcomes. These may include but are not limited to treatments or cures as well as advancing the knowledge of the sequela of Classic Galactosemia through the lifespan.
The application window for the next round of grants will open soon. Here are some important dates to make note of:
Please note that once awarded, the grant is for 1 year from time of receiving the awarded money (i.e.: May 2025 to July 2026).
Review the policies and procedures and Request for Application (RFA) below.
Please note that with your application, you agreeing to the terms and conditions stated in the policies and procedures.
The Galactosemia Foundation funds a broad range of research, both scientific and medical, involving galactosemia, with the ultimate goal of improving the lives of people with galactosemia. Research funded by this grant program may include, but will not be limited to, questions involving genetics, nutrition, diet, speech, physical and occupational therapy, and premature ovarian failure. Four kinds of project designs will be considered eligible for the grants program:
A. RESEARCH PROJECTS:
A research project is one that asks a research question that is answered through rigorous systematic methods. These projects may include but will not be limited to investigations of measurable outcomes in galactosemia care, epidemiology of galactosemia, and novel treatments for galactosemia.
B. CLINICAL PROJECTS:
A clinical project seeks to improve Galactosemia care through the development of tools that may augment the delivery of that care. Examples of this may include but will not be limited to the development of clinical pathways and creation of measurement tools (e.g., to assess quality of life).
C. EDUCATIONAL PROJECTS:
An educational project is one that designs or implements relevant educational programs, develops educational materials, or develops innovative educational tools for patients and the community.
D. COLLABORATIVE MEETINGS:
Galactosemia Foundation recognizes the need for collaboration among professionals and therefore also encourages studies that demonstrate this important activity. The grants program will accept applications to fund collaborative meetings among professionals that may lead to future research projects.
Grants generally are between $10,000 and $50,000, depending upon the scope of the research, clinical, educational, or collaborative project. Grant amounts will be dependent on the amount of money available in the Galactosemia Foundation Research Fund. Research projects must be completed within the time frame selected for the research as stated on the application.
The Galactosemia Foundation has awarded over $931,595 to fund galactosemia related research.
Brain Connectivity & Metabolomics Underlying Cognitive & Motor Functions in Young Patients with CG
Dr. Mathias Gautschi $42,650
Back to Our Roots: Harnessing Power of Natural Remedies to Treat GC-Part Deux
Dr. Bijina413 Balakrishnan $32,413
Is Cellular Senescence Relevant for Galactosemia
$16,666
Prevalence and Progression of Cognitive, Motor and Socioemotional Challenges Experienced by Adults with Classic Galactosemia
Dr. Berry, Dr. Fridovich-Keil and Dr. Rubio-Gozalbo
$49,999
Improved Gene Therapy in a Rate Model of CG
Dr. Fridovich-Keil
$50,000
Back to our roots: harnessing the power of natural remedies to treat CG
Hagen-Lillevik
$23,848
Marching towards a cure for CG
Dr. Lai
$48,457
Novel Gene Therapy for Classic Galactosemia
Dr. Kent Lai
$47,083
Establishing a Brain Organoid System to Study Neurological Complications of Classic Galactosemia
Dr. Gerald Berry
$35,000
Surrogate Brain Markers of Neurological Deficits in Galactosemia
Dr. Alena Svatkova
$48,250
Magnetic Stimulation of the Brain to Improve Motor and Cognitive Functions
Dr. Rubio-Gozalbo
$24,400
Individual prognostication in Classic Galactosemia
Dr. Annet Bosch
$51,271
Defining the role of Galactitol accumulation as a possible mediator of outcome in GALT null fruit flies
Dr. Fridovich-Keil
$30,000
Developing small molecule therapy for Classic Galactosemia by crystallography-based fragment screening
Dr. Wyatt Yue
$35,000
Untargeted analysis of the Galactosemia micro-biome
Dr. Sandy Van Calcar
$40,607
Intervention and outcomes in classic galactosemia
Dr. Judith L. Fridovich-Keil
$30,000
In Vivo Efficacy and Safety Assessment of Small Molecule Inhibitors of Human Galactokinase
Dr. Kent Lai
$49,500
International Classical Galactosemia Guideline development committee: Final Consensus Meeting
Dr. Annet Bosch
$10,875
Modifier Genes and Epigenetic Effects in Galactosemia
Dr. Gerard Berry
$48,800
Toward improved long-term outcome in classic Galactosemia
Dr. Judith L. Fridovich-Keil
$40,361
Characterization of a New Mammalian Animal Model of Classic Galactosemia
Dr. Kent Lai
$33,000
Nutrition Management of Classic Galactosemia
Dr. Sanda Van Calcar
$20,292
Evaluation of Nutrition Recommendations for Classic Galactosemia
Sandra Van Calcar
$27,000
The Brain and Neuro-functioning in Adults with Galactosemia
Dr. Susan Waisbren
$34,997
Computational Biology Strategy for the Development of Potential Drugs for People with Classical Galactosemia
Dr. Anna Marabotti
$41,500
Health and Psychosocial Outcomes in Adults with Classic Galactosemia
Dr. Gerard Berry
$30,000
Galactosemia: Review of Outcomes and Development of Guidelines for Management of Educational and Behavioral Challenges
Dr. Susan Waisbren
$29,919
Toward Improved Intervention For Galactosemia
Dr. Judith L. Fridovich-Keil
$50,000
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