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About Galactosemia
Types of Galactosemia Recent Diagnosis Long-term Complications
Living with Galactosemia
Newborns Toddlers Early Childhood Teens Adults
Stay Informed
Advocating for a Treatment News & Blog Newsletters Funded Research Research In Progress
Resources
Toolkit for Newly Diagnosed Families Galactosemia Handbook Diet Guidelines Clinical Guidelines
Get Involved
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Donate

About Galactosemia

Types of Galactosemia Recent Diagnosis Long-term Complications

Living with Galactosemia

Newborns Toddlers Early Childhood Teens Adults

Stay Informed

Advocating for a Treatment News & Blog Newsletters Funded Research Research In Progress

Resources

Toolkit for Newly Diagnosed Families Galactosemia Handbook Diet Guidelines Clinical Guidelines

Get Involved

Meet Our Board Research Team Outreach Team Conference Team Fundraising Team Communications Team Advocacy Team Host a Fundraiser

Events

Online Community

Membership

Events

Join us for events in support of families and individuals affected by Galactosemia

Upcoming Events

Galactosemia Foundation Community Outreach

February 21, 2025

Free

6:00 pm - 8:00 pm

Raleigh, North Carolina

Let's come together for a fun and meaningful evening. All are welcome. Spread the word and bring a friend. We can't wait to see you!...

See Details

The Denise D’Ascenzo Walk to Fight Rare Diseases Presented By Goff Law Firm

April 26, 2025

Free

10:00 am - 2:00 pm

Hamden, CT

The 2-mile-walk kicks off at 10am. Can't join us in person? Register for the virtual walk and we will mail your shirt & bib out...

See Details

2026 Galactosemia Foundation Conference

July 16, 2026 - July 18, 2026

Free

All Day

Aurora, CO

Save the Date! Our 2026 conference will be held July 16-18 at Hyatt Regency Aurora-Denver Conference Center. More information including cost, agenda and hotel block...

See Details

Past Events

2024 Galactosemia Foundation Conference

July 18 - 20, 2024

Drug Development Meeting for Galactosemia

September 1, 2022

2022 Galactosemia Foundation Conference

July 28, 2022 - July 30, 2022

Stay in the loop and get updates.

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