2024 Galactosemia Foundation Conference

When

July 18 - 20, 2024

All Day

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Where

Concord, NC

Embassy Suites by Hilton Charlotte Concord Golf Resort & Spa

Tickets

$15.00 - $270.00

General Registration (until June 30)

General Registration – $220
General + off-site – $270*
Childcare (0-9) – $270
Mighty-G (9-11), G-Force (12-18), Generation-G (19-25) – $270

Late Registration (July 1 – 18)

General Registration – $25
General + off-site – $300*
Childcare (0-9) – $300
Mighty-G (9-11), G-Force (12-18), Generation-G (19-25) – $300

Please note:  General + Offsite is for individuals 18+ who either have galactosemia or are a spouse, parent, grandparent, signification other, etc. who want to attend offsite activities with an Age Group attendee. They will miss Breakout Series 1 & 2 on Friday, Breakout Series 4 & 5, and part of the General Session on Saturday.

Book Your Hotel Stay

The conference hotel is Embassy Suites by Hilton Charlotte Concord Golf Resort & Spa – use this link to book your room today and receive the conference rate.

Conference Schedule

Thursday, July 18, 2024  
Time Session Description Speaker Room
2:00 PM – 8:00 PM On-Site Research: Please participate in the on-site research being offered! Piedmond; Kitty Hawk; Blueridge
3:30PM- 4:00PM Volunteer Orientation
4:30 PM – 6:00 PM Galactosemia 101 Brittany Cudzilo; Nicole Casale; Maureen Bell Concord B
6:00 PM – 8:00 PM Registration Rotunda South
6:00 PM – 8:00 PM Thursday Night Social Concord E
6:00-8:00 Advocacy Meet & Greet & Letter Writing Gillian Sapia
6:30 PM – 7:00 PM Research Committee Meet and Greet Kelley Foley needs signs & Qr
 

Friday, July 19, 2024

 
Time Session Description Speaker Room
8:00 AM- 8:30 AM Any late registration Registration South
8:30 AM – 9:00 AM Childcare Dropoff Carolina
7:00 AM – 7:00 PM On-Site Research: Please participate in the on-site research being offered! Piedmond; Kitty Hawk; Blueridge
Time Session Description Speaker Room
9:00 AM – 9:20 AM Welcome to the 2024 Conference Nicole Casale Concord
9:20 AM – 9:40 AM Fireside chat -Panel of speakers with Galactosemia Various Community Members
9:40 AM – 10:00 AM Meet the board- what we do and how to get involved! Board Members
10:00AM – 10:15 AM Treasurer’s Report; Fundraising & Recognition Board Member
10:15 AM- 10:40 AM Research Team- Updates Kelley Foley
10:40 AM- 11:10AM Stronger Together Dr. Shoshana Shendelman
11:10 AM – 11:20 AM Close of General Session Brittany Cudzilo
11:20 AM- 12:00 PM Roundtable- Meet and Greet
12:00 PM-1:10PM Galactosemia Foundation sponsored lunch @12:00 Concord
1:15PM  -2:15PM Breakout Series #1 Various Speakers Various Rooms
2:15 PM – 2:30 PM Travel between breakout sessions
2:30 PM – 3:30 PM Breakout Series #2 Various Speakers Various Rooms
3:30PM – 3:40PM Travel to General Session
 3:40PM – 3:50PM General Session- Welcome Back Board Member Concord
3:50PM -4:20PM Funded Research – Back to Our Roots: Harnessing Power of Natural Remedies Dr. Balakrishnan
4:25PM – 4:55PM Funded Research- Adult Study Dr. Berry; Dr. Judy; Dr. Estelle
4:55 PM – 5:05 PM Closing—Day Recap/Announcements Nicole Casale
       
5:15 PM – 5:30 PM Pick up children from childcare Carolina
5:15 PM – 6:00 PM Designated meetup space for families that want to connect Rocky River & Pool Terrace
5:15 PM – 7:30 PM Talent Show Rehearsal Concord
7:30 PM – 9:00 PM A Grand Night for Talent Together evening social Concord
 

Saturday, July 20, 2024

Time Session Description Speaker Room
6:00 AM – 9:00 AM Breakfast on your own
8:30 AM – 9:00 AM Childcare drop-off Carolina
7:00 AM – 7:00 PM On-Site Research: Please participate in the on-site research being offered! Piedmond; Kitty Hawk; Blueridge
9:00 AM – 9:15 AM General Session- opening remarks GF Board Member Concord
9:15AM -9:50 AM Funded Research- Brain connectivity and metabolomics underlying cognition and motor functions Dr. Gautschi
9:50 AM- 10:25 AM Funded Research- “Is Cellular Senescence Relevant for Galactosemia?” Dr. Masuda
10:25AM- 10:30 AM Close of Morning General Session Board Member
10:30 AM – 10:45 AM Travel to breakout sessions
10:45AM- 11:45 AM Breakout Session Series #3 Various Speakers Various Rooms
12:00 PM – 1:15 PM Galactosemia Foundation sponsored lunch @12:00 Concord
1:15 PM – 2:15 PM Breakout Session Series #4 Various Speakers Various Rooms
2:15 PM – 2:25 PM Travel to final breakout
2:25 PM – 3:25 PM Breakout Session Series #5 Various Speakers Various Rooms
3:25 PM – 3:35 PM Travel to final General Session
3:35PM – 4:05 PM Welcome to our Final General Session Brittany Cudzilo & Jodie Solari Concord
Galactosemia Angels–We will remember!
Paul Pruszynski Scholarship award
4:05 PM – 4:50 PM Panel of Doctors Q&A Various Speakers
4:50 PM – 5:05 PM Conference Closing Remarks & 2026 Conference location Announcement Nicole Casale
5:00 PM – 5:30 PM Pick up children from childcare Carolina
5:15 PM – 6:00 PM Designated meetup space for families who want to connect Rocky River & Pool Terrace
7:30 PM – 10:30PM Saturday Night Social and Dance Concord

 

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Tickets

Ticket Type Price Spaces
General $220.00
General + Offsite $270.00
Childcare (0-9)
For age 9 you can choose to do Childcare or Mighty G
$270.00
Mighty-G (9-11) $270.00
G-Force (12-18) $270.00
Gen G (19-25) $270.00
Conference T-Shirt $15.00
No Whey T-Shirt $15.00

Contact Information

Ticket Order Summary

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