We’re hosting a virtual EL-PFDD Meeting on September 1 in partnership with the National Organization for Rare Disorders, Inc. (NORD). This is a once-in-a-lifetime opportunity for our community to let the FDA know we will fight for treatment options. Don’t stand on the sidelines – help by sharing your experience with galactosemia via polling questions or participating in the audience discussion during the meeting. Anyone impacted by galactosemia is encouraged to attend.

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