Resources
Explore resources and connect with others
Resource
A Handbook for the Galactosemia Community
This galactosemia handbook presents current information for each life stage, including various symptoms that may appear. Cited recommendations are based on the international clinical guideline, peer-reviewed data, expert insights, and first-hand experience from the galactosemia community.
Resource
Galactosemia Toolkit for Newly Diagnosed Families
The Galactosemia Foundation’s informative guide gives you the tools and resources you need to be the best advocate for your child.
Help Manage Your Galactosemia
Diet Guidelines
Learn more about a Galactosemia-friendly diet.
Help Manage Your Galactosemia
Clinical Guidelines
International clinical guidelines for the management of classical galactosemia: diagnosis, treatment, and follow-up.
Additional Galactosemia Resources
Additional Galactosemia Support
Social Media
The Galactosemia Foundation maintains official Facebook, Twitter, Instagram, and Pinterest accounts.
There are many other groups available on Facebook, other social media sites and blogs and websites that you can find by searching the internet for ‘galactosemia’.
Sites other than our official website and social media accounts are maintained by individuals and are not officially affiliated with the Galactosemia Foundation. Please note that individuals stories and experiences vary and most people posting are not qualified to provide medical advice. Please consult with qualified professionals for diet and medical advice.