We are working tirelessly to tell our story, in hopes that the FDA considers patient and caregiver perspectives when evaluating risk-benefit for potential new treatment options. Check out the newsletter to learn more about our advocacy efforts and how you can help.
Read MoreNewsletter content is focused on the Galactosemia community including current research projects benefiting those with galactosemia; diet, education, and fundraising opportunities; volunteer opportunities, and our calendar of events which includes fundraisers across the country. Parents, children, and professionals in the field are encouraged to submit articles, stories, reports, information, recipes, and photos they deem beneficial to the galactosemia community.
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