Donate
About Galactosemia
Types of Galactosemia Recent Diagnosis Long-term Complications
Living with Galactosemia
Newborns Toddlers Early Childhood Teens Adults
Stay Informed
Advocating for a Treatment News & Blog Newsletters Funded Research Research In Progress
Resources
Toolkit for Newly Diagnosed Families Galactosemia Handbook Diet Guidelines Clinical Guidelines
Get Involved
Meet Our Board Research Team Outreach Team Conference Team Fundraising Team Communications Team Advocacy Team Host a Fundraiser
Events
Online Community
Membership
Sign In
Register

← Back to Our Team

Nicole Casale

President

Nicole joined the board in 2014. She has attended the Dallas, Orlando, Atlanta, and Denver conferences and is looking forward to seeing everyone again at the next one.  She and her husband Nick live in Latham, NY, and have three children, Noah, Joseph and Reagan.  Joseph was born in March of 2012, and was diagnosed with classic Galactosemia at 5 days old. Like many he had a rough start, becoming septic and contracting meningitis at 9 days old which resulted in unilateral deafness.  Today he is doing great and works really hard at both taekwondo and gymnastics.  Currently Jojo receives speech, occupational therapy and special education services.  Nicole’s other two children do not have Galactosemia, they may or may not be carriers.

Nicole is a financial coach and homeownership counselor at Troy Rehabilitation and Improvement Program. She received her Bachelor’s degree in Elementary Education from University at Plattsburgh, and her Masters of Science in Special Education from the University at Albany.  Her hobbies include running, biking and swimming, as well as fundraising.

Stay in the loop and get updates.

Sign up for the Foundation's mailing list

Sign Up Today!